On 25-27 October 2016, we organised another ‘Bring Your Own Data workshop’ (BYOD) in Leiden, the Netherlands. This time, we focused on software that is used to collect information about patients and their diseases. The BYOD brought together software solution providers, linked data experts, and rare disease experts to work on making the software produce data that is findable, accessible, interoperable, and reusable for humans and computers (FAIR). This does not change much for users entering data, but it means a great deal for healthcare workers and researchers who wish to find answers across multiple resources in the most efficient way.
Background
Patient and disease information is gathered in many different forms and at many different places around the world, ranging from case report forms in hospitals to disease information gathered from scientific literature. Consequently, data that could potentiallly help patients find appropriate care, or help researchers find new treatments are scattered and non-trivial to combine (if access is granted). If the data at each location would be findable, accessible, interoperable, and reusable for humans, but also computers, and conform to a common set of standards than we substantially accellerate information retrieval for health care and data integration for research.
Time and place: 25-27 October 2016, LIACS, Leiden
Venue address: LIACS (Snellius building), Niels Bohrweg 1,2333 CA Leiden