Workshop to link rare disease registries: a report

The third Bring Your Own Data workshop (BYOD) for rare disease registries in Rome (29-30 September 2016) brought more registries with more data than ever before. Participants responded positively to learning about making registries Findable, Accessible, Interoperable and Reusable for humans and computers (FAIR) at the source. A proof-of-concept query across resources was shown for every break-out group, and a standard FAIRification procedure was fine-tuned. Several registries expressed interest to start a FAIR data project for their registry. You can read a report about the BYOD here.

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