The Repositive team together with Springer Nature has recently formulated ten simple rules for sharing human genomic data.
“These 10 Simple Rules have been developed from our combined experiences of working with human genomic data, data repositories and data users. We do not claim that these rules will eliminate every possible risk of data misuse. Rather, we hope that these will help researchers to increase the reusability of their human genomic data, whilst also ensuring that the privacy of their subjects is maintained according to their consent frameworks. Many of the principles presented are also applicable to other types of clinical research data, where participant privacy is a concern.”
The manuscript by Manuel Corpas, Charlotte Whicher, Nadezda V. Kovalevskaya, Tom Byers, Amanda A. McMurray, and Fiona G.G. Nielsen (Repositive Ltd, Future Business Centre, Cambridge, UK) and Varsha K. Khodiyar (Springer Nature, London, UK) was originally submitted to Biorxiv.org Read more.