In September 2017, the ELIXIR Rare Disease Use Case organised an International Summer School on Rare Disease and Orphan Drug Registries and a Bring Your Own Data workshop. The two events were organised and hosted by the National Centre for Rare Diseases – Istituto Superiore di Sanità in Rome. The organisation was supported by several organisations, including DTL and ELIXIR-NL. Read a report about the events.
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