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Rare disease Summer School & BYOD: a report

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In September 2017, the ELIXIR Rare Disease Use Case organised an International Summer School on Rare Disease and Orphan Drug Registries and a Bring Your Own Data workshop. The two events were organised and hosted by the National Centre for Rare Diseases – Istituto Superiore di Sanità in Rome. The organisation was supported by several organisations, including DTL and ELIXIR-NL. Read… Continue reading →

Cancer omics Bring Your Own Data workshop: a report

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UMC Utrecht and DTL organised a cancer omics Bring Your Own Data (BYOD) on 6-8 June 2017 in Utrecht. Four Cancer Genomics Center datasets were made FAIR and we demonstrated the advantages of interoperability. Read the full report written by Daphne van Beek. About BYODs At a BYOD workshop, experts assist you in making your research data FAIR. The main goal of these three-day events is to make… Continue reading →

Plant phenotype BYOD/hackathon in Ghent: a report

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ELIXIR Belgium and ELIXIR-NL organised a BYOD/hackathon in Ghent (Belgium) on 30 May – 1 June 2017. The event demonstrated the potential of FAIR data in plant research. In addition, it included a hackathon to make BrAPI (the interoperability platform within the plant domain) FAIR. The event was organised to showcase the potential of FAIR data in the context of plant phenotypic data.… Continue reading →

2 BYODs coming up

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DTL frequently organises ‘Bring your own data’ (BYOD) workshops, where research data are made FAIR (Findable, Accessible, Interoperable and Reusable). The FAIR data principles act as an international guideline for good data stewardship. In BYODs, domain experts work side by side with FAIR data experts to get hands-on experience with FAIRifying real-world datasets. Two BYODs will be organised in May and June 2017. Please contact Mascha Jansen… Continue reading →

Bring Your Own Rett Syndrome Data workshop: a summary

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The ELIXIR-EXCELERATE project collaborates with the Maastricht Rett Expertise Centre to improve data availability for rare diseases like Rett Syndrome. On 1-3 November 2016, a three day Bring Your Own Rett Syndrome Data workshop was held at Maastricht University. The summary below was written by Friederike Ehrhart of Maastricht University. The workshop’s aim was to produce FAIR nanopublications. FAIR is an internationally adopted… Continue reading →

Workshop to link rare disease registries: a report

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The third Bring Your Own Data workshop (BYOD) for rare disease registries in Rome (29-30 September 2016) brought more registries with more data than ever before. Participants responded positively to learning about making registries Findable, Accessible, Interoperable and Reusable for humans and computers (FAIR) at the source. A proof-of-concept query across resources was shown for every break-out group, and a… Continue reading →

Software solution provider BYOD

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On 25-27 October 2016, we organised another ‘Bring Your Own Data workshop’ (BYOD) in Leiden, the Netherlands. This time, we focused on software that is used to collect information about patients and their diseases. The BYOD brought together software solution providers, linked data experts, and rare disease experts to work on making the software produce data that is findable, accessible, interoperable,… Continue reading →

BYOD on Wikipathways, Nanopublications and Rett Syndrome, 1- 3 November 2016, Maastricht

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On 1-3 November 2016 Maastricht University will organize a BYOD on WikiPathways, nanopublications and the Rett Syndrome. The BYOD is part of the rare disease use case of ELIXIR-EXCELERATE, and supported by ELIXIR-NL. The Rett Syndrome is a rare disease actively being studied at Maastricht University. This research combines experimental research and bioinformatics. In this research, nanopublications have a lot… Continue reading →

BYOD on rare disease registries and biobanks

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On 26-27 November 2014, 40 rare disease and data integration experts took part in a ‘Bring Your Own Data’ workshop on rare disease registries and biobanks. Held in Rome, the event was organised by DTL, part-sponsored by ELIXIR and organised in conjunction with the EU-funded RD-CONNECT project. The aim was to better link the data from rare disease registries and biobanks… Continue reading →

First Bring Your Own Template (BYOT) meeting

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The first Bring Your Own Template (BYOT) meeting, organised by DTL/ELIXIR-NL, BioMedBridges, the FAIRport initiative, BBMRI-NL, CTMM/TraIT, focussed on preparation for sharing and integration of data structures used for data capture, also known as ‘data templates’. This was motivated by a range of related activities in the space of ‘experimental data mapping and pooling’, in particular EU-BioMedBridges model registry, EU-BioSHaRE/DataSHaPER… Continue reading →