Ethical, legal and social implications of preventative medicine

Preventative medicine is not without costs, and not just financial ones. Genetic testing, in particular, raises difficult questions. The upcoming Health-RI Conference (Jan 17, 2019) on P4 Medicine explores some of the issues. At first sight, preventative medicine looks like a no-brainer. As the saying goes, prevention is better than cure. In reality, however, preventative medicine can lead to difficult… Continue reading

Dutch Ministry of Health sees perspectives for FAIR and Personal Health Train to employ data to serve health

In close consultation with the health care and research field, Dutch Minister of Medical Care and Sports Bruno Bruins has developed a vision how data can be employed to serve health. November 15th, he has shared his vision with the Dutch Parliament.  <Klik hier voor Nederlandstalige versie> In his letter to the Parliament Bruins writes: “Employing data for health needs… Continue reading

Health-RI conference: Data, knowledge and tools for personalized therapy

At the upcoming Health-RI Conference (Jan 17, 2019) leading cancer researchers and data scientists show how data, knowledge and clinical decision support tools combine to bring personalized medicine to reality. Because each patient’s tumor is as genetically unique as the patient, whole genome sequencing of tumors offers the possibility of identifying the genetic and epigenetic changes that transform normal cells… Continue reading

The Netherlands joins the Million European Genomes coalition

Dutch Minister of Medical Care and Sports, Mr. Bruno Bruins, has co-signed the European Declaration about the Million European Genomes initiative on behalf of the Netherlands. Minister Bruins has informed the House of Representatives of the Netherlands about this step, as part of his letter to the Parliament on sharing healthcare information in international context (‘Zorginformatiedeling in internationale context’). The… Continue reading

4th Health-RI conference: Opening doors to P4 Health

The 4th Health-RI conference will be held in Utrecht, the Netherlands, on Thursday, January 17, 2019. The program will focus on the future of Health and Medicine and the required support role of science and research infrastructure as innovations around ‘big’ complex data facilitate a vitally functioning and healthy society. Scientific presentations from national and international experts will explore four themes: Prediction, Prevention, Personalization, and… Continue reading

2 October: Lab in the Clouds workshop at DTL Communities@Work

Dr Irene Nooren (SURF) and Dr Arnoud van der Maas (Radboudumc, ELIXIR-NL) will organise a workshop ‘Lab in the Clouds: the cloud as your research environment’ at the DTL Communities@Work conference on 2 October 2018 in Utrecht. SURF and ELIXIR-NL are involved as co-organisers. Current cloud technology makes it possible to build your own virtual research environment using public or private cloud ICT infrastructure… Continue reading

2 October: Omics data infrastructure workshop at DTL Communities@Work

Professor Peter-Bram ‘t Hoen (Radboudumc) and Professor Morris Swertz (UMC Groningen and Groningen University) will organise a workshop ‘Shaping the national digital infrastructure for large (cross-)omics projects’ at the DTL Communities@Work conference on 2 October 2018 in Utrecht. The Netherlands X-omics Initiative, ELIXIR-NL, and Health-RI are involved as co-organisers. Are you active in (cross-)omics research projects in the life sciences (e.g.,… Continue reading

ELSI (Ethical, Legal and Social Implications) Servicedesk officially launched

On 9 July 2018, the ELSI (Ethical, Legal and Social Implications) Servicedesk of Health-RI was officially launched. This online servicedesk offers guidance and answers to the ethical, legal, and societal questions around personalised medicine research faced by life sciences professionals, policymakers, and patients. Go to the ELSI Servicedesk website. Personalised medicine is strongly emerging. Treatments are more focused on the… Continue reading

Research infrastructure is key component of Dutch Research Roadmaps for health

‘Now is the time to invest heavily in order to solve the major societal challenges related to health’. That is the key message of three Research Roadmaps that Ernst Kuipers (Chair of the NFU) handed over to Ingrid van Engelshoven (Minister of Education, Culture, and Science) and Paul Blokhuis (State Secretary for Health, Welfare and Sport) on 22 March 2018. Health-RI features prominently in… Continue reading