Ethical, legal and social implications of preventative medicine

Preventative medicine is not without costs, and not just financial ones. Genetic testing, in particular, raises difficult questions. The upcoming Health-RI Conference (Jan 17, 2019) on P4 Medicine explores some of the issues. At first sight, preventative medicine looks like a no-brainer. As the saying goes, prevention is better than cure. In reality, however, preventative medicine can lead to difficult… Continue reading

Dutch Ministry of Health sees perspectives for FAIR and Personal Health Train to employ data to serve health

In close consultation with the health care and research field, Dutch Minister of Medical Care and Sports Bruno Bruins has developed a vision how data can be employed to serve health. November 15th, he has shared his vision with the Dutch Parliament.  <Klik hier voor Nederlandstalige versie> In his letter to the Parliament Bruins writes: “Employing data for health needs… Continue reading

Jaak Vilo (ELIXIR Estonia) will present the Estonian Biobank at UBC seminar in Utrecht

Prof. dr. Jaak Vilo is invited to Utrecht to share his experiences with ELIXIR Estonia and the Estonian Biobank during a seminar on 28 November, organised by the Utrecht Bioinformatics Center.  Jaak Vilo (Elixir head-of-node Estonia and head of the Institute of Computer Science at the University of Tartu) will speak about: “The set up of the Estonian Biobank and use cases: polygenic… Continue reading

Health-RI conference: Data, knowledge and tools for personalized therapy

At the upcoming Health-RI Conference (Jan 17, 2019) leading cancer researchers and data scientists show how data, knowledge and clinical decision support tools combine to bring personalized medicine to reality. Because each patient’s tumor is as genetically unique as the patient, whole genome sequencing of tumors offers the possibility of identifying the genetic and epigenetic changes that transform normal cells… Continue reading

2 October: Lab in the Clouds workshop at DTL Communities@Work

Dr Irene Nooren (SURF) and Dr Arnoud van der Maas (Radboudumc, ELIXIR-NL) will organise a workshop ‘Lab in the Clouds: the cloud as your research environment’ at the DTL Communities@Work conference on 2 October 2018 in Utrecht. SURF and ELIXIR-NL are involved as co-organisers. Current cloud technology makes it possible to build your own virtual research environment using public or private cloud ICT infrastructure… Continue reading

George Kowalchuk keynote speaker at DTL Communities@Work 2018

George Kowalchuk is Professor of Ecology and Biodiversity at Utrecht University. He is one of the initiators of the Netherlands Plant Eco-phenotyping Centre (NPEC), which received funding from NWO’s National Roadmap for Large-Scale Scientific Infrastructure. At the DTL Communities@Work conference, he will give a keynote lecture about ‘Unlocking the power of plants’. NPEC will enable researchers to unravel the genetics… Continue reading

2 October: Omics data infrastructure workshop at DTL Communities@Work

Professor Peter-Bram ‘t Hoen (Radboudumc) and Professor Morris Swertz (UMC Groningen and Groningen University) will organise a workshop ‘Shaping the national digital infrastructure for large (cross-)omics projects’ at the DTL Communities@Work conference on 2 October 2018 in Utrecht. The Netherlands X-omics Initiative, ELIXIR-NL, and Health-RI are involved as co-organisers. Are you active in (cross-)omics research projects in the life sciences (e.g.,… Continue reading

ELIXIR-NL receives funding to coordinate data approaches of Dutch life science facilities

NWO has announced that ELIXIR-NL will receive funding to coordinate the data approaches of life science facilities in the National Roadmap for Large-Scale Scientific Infrastructure. Professor Jaap Heringa, Head of the Dutch ELIXIR node, explains: “In 2016, the Permanent Committee marked ELIXIR-NL as one of the strategic life science infrastructures on the National Roadmap, acknowledging our coordinating role across the… Continue reading

NPEC: will a tiny country lead the next green revolution?

In April 2018, NWO awarded funding to ten proposals in the National Roadmap for Large-Scale Scientific Infrastructure. Among the lucky few is the Netherlands Plant Eco-phenotyping Centre (NPEC) of Utrecht University and Wageningen University & Research. Initiators George Kowalchuk and Mark Aarts describe the what, why, and how of NPEC. George Kowalchuk is Professor of Ecology and Biodiversity at Utrecht… Continue reading

Million European Genomes Alliance: the Netherlands should join

In April 2018, thirteen European countries signed a declaration of cooperation ‘towards access to at least one million sequenced genomes in the European Union by 2022’. On behalf of a wide range of stakeholders assembled in Health-RI, Gert-Jan van Ommen (BBMRI-NL) and Ruben Kok (DTL) have sent a letter to the Dutch Minister for Healthcare encouraging the Netherlands to co-sign… Continue reading