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FAIR Data in Medical Research: Incorporating the FAIR Principles in the Research Data Life Cycle

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On April 22nd 2022, Martijn Kersloot defended his PhD thesis in Amsterdam. Kersloot wrote his thesis, entitled ‘FAIR Data in Medical Research: Incorporating the FAIR Principles in the Research Data Life Cycle’, under the supervision of promoters professor Ameen Abu-Hanna and Dr. Ronald Cornet and co-promotor Dr. Derk Arts. With his thesis, Kersloot aimed to incorporate the FAIRification steps into… Continue reading →

ELIXIR-CONVERGE June 29 FAIR hackathon to create lesson plans

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Please register & help us find experts by sharing the invite. We would love to have Dutch Life Sciences & Health data stewards (and alike) on board. Help us create lesson plans for life sciences research organisations to advance their data stewards’ and researchers’ FAIR skills. Audience: Everyone willing to work on joint lesson plans on how to implement FAIR… Continue reading →

Ethical, legal and social implications of preventative medicine

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Preventative medicine is not without costs, and not just financial ones. Genetic testing, in particular, raises difficult questions. The upcoming Health-RI Conference (Jan 17, 2019) on P4 Medicine explores some of the issues. At first sight, preventative medicine looks like a no-brainer. As the saying goes, prevention is better than cure. In reality, however, preventative medicine can lead to difficult… Continue reading →

Dutch Ministry of Health sees perspectives for FAIR and Personal Health Train to employ data to serve health

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In close consultation with the health care and research field, Dutch Minister of Medical Care and Sports Bruno Bruins has developed a vision how data can be employed to serve health. November 15th, he has shared his vision with the Dutch Parliament.  <Klik hier voor Nederlandstalige versie> In his letter to the Parliament Bruins writes: “Employing data for health needs… Continue reading →

Health-RI conference: Data, knowledge and tools for personalized therapy

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At the upcoming Health-RI Conference (Jan 17, 2019) leading cancer researchers and data scientists show how data, knowledge and clinical decision support tools combine to bring personalized medicine to reality. Because each patient’s tumor is as genetically unique as the patient, whole genome sequencing of tumors offers the possibility of identifying the genetic and epigenetic changes that transform normal cells… Continue reading →

4th Health-RI conference: Opening doors to P4 Health

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The 4th Health-RI conference will be held in Utrecht, the Netherlands, on Thursday, January 17, 2019. The program will focus on the future of Health and Medicine and the required support role of science and research infrastructure as innovations around ‘big’ complex data facilitate a vitally functioning and healthy society. Scientific presentations from national and international experts will explore four themes: Prediction, Prevention, Personalization, and… Continue reading →

EUR 2.25 million for essential building block of Health-RI

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The Dutch Cancer Society will fund the Translational Research IT (TraIT) project with EUR 2.25 million to build an integrated Dutch biomedical research infrastructure. By gathering, processing, and storing data on a large scale, opportunities arise to accelerate and improve cancer diagnostics and treatments. An efficient and integrated research infrastructure is essential for storing and processing of these large amounts of data.… Continue reading →