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Category Archives: FAIR data

European Open Science Cloud Declaration online

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On 26 October 2017, the European Commission made the EOSC Declaration available to all scientific stakeholders, for their endorsement and commitments to the realisation of the EOSC by 2020. The Declaration emerged from the EOSC Summit of 12 June, where more than 80 key scientific stakeholders showed a strong sense of commitment, dedication and intellectual rigour with respect to the implementation of the… Continue reading →

Science goes FAIR at Health-RI 2017

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What does FAIR Data mean in practice? How can you make your data FAIR? What novel science becomes possible when research data become more FAIR? Luiz Bonino and Michel Dumontier will answer these pressing questions at the Health-RI conference on 8 December 2017 in Utrecht. Register for Health-RI 2017. View the conference programme. FAIR Data is rapidly becoming the new standard… Continue reading →

Reuse of clinical data for research: overcoming the hurdles

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The systems of the eight Dutch UMCs contain a wealth of patient data, such as medical images, physical examination results, and treatment outcomes. “These data have been collected to diagnose and treat patients, but we can reuse them to answer important research questions. However, reusing clinical data is not as simple as you may think. In addition to concerns about… Continue reading →

The first Data4lifesciences symposium: a report

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On 11 September 2017, the Centraal Museum in Utrecht hosted the very first Data4lifesciences symposium. D4LS Programme Manager Dr Jan-Willem Boiten: “This symposium was an important milestone for the programme; we presented an overview of our first results.” The NFU programme Data4lifesciences (D4LS) aims to realise an integrated research data infrastructure for biomedical research at the Dutch UMCs. DTL is actively involved… Continue reading →

Watch the ELIXIR Webinar on the rare disease interoperability pilot

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On 18 October 2017, Marco Roos presented an ELIXIR webinar ‘Rare Disease test case for ELIXIR interoperability backbone’. “The ELIXIR rare disease pilot aims to make data machine readable and linkable, making it easier for researchers to combine data from multiple sources,” explains Roos in the webinar. You can watch the webinar here.

Maastricht University’s Institute of Data Science lands two major research projects on FAIR data

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The Institute of Data Science (IDS) at Maastricht University is the only European research group invited to take part in an international research project led by the National Center for Advancing Translational Sciences (NCATS) in the USA. “This will allow us to collaborate with the world leaders in translational research”, says Michel Dumontier, distinguished university professor of Data Science and… Continue reading →

FAIR: Putting machine readability first

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Barend Mons recently gave an interview about the FAIR principles and the GO FAIR initiative in the journal e-Data & Research. “The way science currently deals with the huge amounts of research data has to change. If you receive tax money for your research, you should take care of the data that you produce and facilitate reuse by others. The FAIR… Continue reading →

Rare disease Summer School & BYOD: a report

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In September 2017, the ELIXIR Rare Disease Use Case organised an International Summer School on Rare Disease and Orphan Drug Registries and a Bring Your Own Data workshop. The two events were organised and hosted by the National Centre for Rare Diseases – Istituto Superiore di Sanità in Rome. The organisation was supported by several organisations, including DTL and ELIXIR-NL. Read… Continue reading →

Integrating data to learn more

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Phys.org recently published an interview with Katy Wolstencroft. She is an assistant professor in bioinformatics and computer science at Leiden University and an active contributor in DTL and ELIXIR-NL. “Tremendous amounts of data are generated in scientific research each day. Most of this data has more potential than we are using now. We just need to integrate and manage it better,”… Continue reading →

G7 Science Ministers suggest policy guidelines related to Open Science

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The G7 Science and Technology Ministers have released a communiqué with science policy guidelines. These include suggested guidelines on FAIR Data treatment and open science. Read the full communiqué. The Science Ministers of Canada, France, Germany, Italy, Japan, the United Kingdom, the United States of America, and the European Commissioner for Research, Science and Innovation, met in Venaria on 28… Continue reading →